Location: Cambridgeshire, UK
Emily lives with her husband Jeff and young family on the Cambridgeshire Fen. She is mum to three amazing young girls Tilly (12) Florence (10) and Evie (7). Evie was diagnosed with Reflex Anoxic Seizures just before her first birthday having had her first seizure at 6 months old. Evie's seizures typically come in clusters and have been triggered by shock, pain, loud noises and sudden climate change. Evie is an active young lady and enjoys all the usual pursuits of her child of her age. Here Emily shares her story and talks about her experiences of respoding to and managing a child with RAS. She has written on the topic for STARS magazine and her husband Jeff ran the London Marathon to raise awareness and money for STARS charitable work. Professionally Emily runs her own business working as an organisation development consultant and leadership coach. She also teaches the MiSP Mindfulness Curriculum in schools.